Showing posts with label parenthood. Show all posts
Showing posts with label parenthood. Show all posts

Sunday, December 30, 2012

The borders of me

My own particular ADHD presentation has been a significant impairment (and, of course, advantage) since early childhood. Like so many diagnoses that have landed later in my life, I can chart-out the onset of various tics and stimming practices, various odd mental states, from my earliest memories (I have reliable episodic memory from about 2½ years of age). All the same, my self-assembled coping mechanisms sufficed to get me (if only barely) through five excruciating semesters of a particularly challenging undergraduate program, at which point I spontaneously developed a panoply of seemingly arbitrary neuroses and sleep disorders. A year or so of research, experimentation, and reflection later, I settled on a stimulant treatment (Adderall, a mixture of R- and L-Amphetamine salts, and a SDRI (presently duloxetine HCl in subclinical dosage, but I've tried a few over the years) for cingulate gyrus issues) that made [mostly] everything just work again. That was over a decade ago, now.

Many things have changed in the intervening years. I take ever so much better care of myself, now, than I did then. I have a much more realistic and intimate understanding of my nervous system's capabilities and limitations, and how they degrade (both gracefully and otherwise) over time under persistent abuse. I know, now, how fundamental a healthy mind is to the maintenance of emotional wisdom and strength, and I am committed—for the sake of my self and my family—to protecting my mental health.

I have more insight, now, into certain traits that once seemed to be unusual offshoots of my existing diagnoses, if not outright inexplicable. It so happens that I am dissociation-prone. My emotional detachment and level mood stem from this rather than from a neurotransmitter-cycle mutation in the neurons of my limbic system. I am a survivor of childhood trauma, which likely led to my dissociative predilection. I am transgender, the neurological implications of which I am still unraveling. I am neurologically improbable in several other ways, with potential memory impairments having developed into unusually facile and encyclopedic mnemonic ability, dysfunction in episodic memory organization having produced a mind forever storytelling rather than a disoriented amnesiac. I have begun to complete entire sections of the puzzle, though it will likely never be done.

The time has come, I feel, to begin cataloging certain anecdotes that have become touchstones for me, that serve as markers and landmarks in my experience of daily variations in mental function. They are outliers, some strange, some horrible, some amusing. They are all a part of me.

Monday, October 22, 2012

A Loss

I have a story to tell, but I'm afraid to tell it—afraid of how I will hurt, afraid of missing the mark, afraid of finding more questions than answers. But I'm terrible at sorting these things out in my head, at least once they've aged this long and grown this tangled. What am I good at? Telling stories. So.

I have a story to tell. It's a story about a family, and about how terrible things happen to nice people. It's a story that is full of pregnancy- and mortality-related triggers, so I advise you now: read with caution. It's a piece of my story. Specifically, it is how I exited denial.

…

In the spring of 2005, a beautiful baby girl is born in San Francisco. The birth is not easy, and her mother struggles to recover and to endure the strain of new motherhood. A fiery little creature, she takes much attention and minding as the months pass and she begins to crawl and climb and walk and run. She tweaks people as easily as she charms them, then charms them all over again, and so the family grows together in its way, quirky, imperfect, but loving.

I am one of that little girl's mothers and also her father; this is the story of how our family grows from three to four.

Around my daughter's second birthday, we conceive our second child. It had taken some time to get over the memory of her first pregnancy, but my wife wanted the children to be relatively close together in age, and so family planning wins out over reticence. There's that first heartbeat, and then the ultrasound, where a little peanut of a person shows-up with a beating heart. [I'm freaking-out, right now as I write, desperate to understand why I'm doing this to myself, why am I re-living this? WHY? How many tears do I want? How many is enough?] Proud, anxious newly-expectant parents, all over again.

One battery of fetal-health tests pass, then another. We see a tiny human begin to form on the ultrasound, and it moves. Then we see genitalia—a little girl. A little sister. We are thrilled.

Then a test result from the second battery is reported as being borderline. Could we get more tests done? Of course we can. We have a more precise nuchal fold measure taken, and full body stats revise the date of conception later by several weeks. The numbers are insignificant by themselves -- nothing manifestly abnormal, only borderline, but there are enough of them askew that our Ob/Gyn orders more precise testing. It is too late in the pregnancy for a CVS, so an amniocentesis is performed.

We wait for the results with a horrible sort of dread; somehow our new, beautiful little girl has slid in an eyeblink from future joy to immediate fear. The nightmares that every newly-pregnant couple puts to rest as soon as possible—that WE had set aside—are all of a sudden hiding just out of sight.

I receive a summons: “The clinic called; come home, please.” I leave my half-completed voice lesson and hurry the five blocks home.

She was there on the couch.

I don't remember the precise words; I mean, I do—heaven help me, I do—but I'm incapable of the internal review to organize those particular memories to my usual precision. She was in tears:

“Triploidy. They say she's triploid; three of every chromosome. It's terminal.” “Oh god. Oh my god. How … What …” “I want this baby” “What do we do?” “What do people do?” “I love this baby” “Our baby girl …” “I really want this baby.” Not one of those fragments, handed back and forth between us, was delivered whole. Each was punctuated by sobs, gasping sobs, voices cracking, shaking. And yet I will never, ever, ever forget them.

Like the moment JFK was shot. The moment, for us both, that our second daughter began to die.

We call our parents. Mine hurry into town, collect our little girl from her day care and bring her, briefly, home. And here is another moment seared into my memory: My wife suddenly collapses, sobbing, into my mother's arms, her postponement of grief failing catastrophically, and our 2½ year-old daughter looks up at them from a few feet away, transfixed. She is in shock. Her little jaw opens slightly as her world lists, one particular pillar having just crumbled before her eyes. For almost two years afterwards, she will make a habit, throughout mornings and evenings, of regularly, repeatedly checking on our emotional condition: are we happy? are we sad? are we tired? are we okay?: Every question an aftershock.

My parents take our daughter for several nights, we take bereavement leave from our jobs, and the snarl of questions unravels into ruin. We google “triploidy”—after all, my brother has trisomy-21, and he has led a loving, if slow, life.  It is absolutely, unequivocally, fatal: miscarriage, or a few weeks of painful, failing life. One girl, the longest-lived on record, survived almost half a year, and I'm moved to tears by how hideously cruel her parents' outspoken belief in sanctity of life feels as I read of it.

We visit our clinic and meet with a genetic counselor, who gently summarizes what we already have learned: a painful, weeks-long life if she survives to term, serious danger to the mother: risk of death in delivery or sterility from molar complications. Terror grips us. We come to a conclusion.

We will terminate. We meet with a surgeon. I ask … but no, some things are inessential. [And some pain I still husband alone.]

It is a D&C. We learn what this entails and go numb. Our daughter could be born into brief and inchoate agony and threaten to end her mother's life, or … could gently enter a final sleep in utero. This is no choice. And yet, we cannot shirk our agency—we do choose. Oh, God. We choose.

We begin grief counseling. The termination happens. We continue counseling. We return to our jobs, going through what motions we can. Months pass, little more than a blur in my memories.

We grieve all through the winter. I teach myself to knit, and construct an absurdly sophisticated, crazily geeky scarf.

We get the medical okay to try again, to risk another conception, another devastation. Eventually, we achieve the courage to try, and conceive our third child immediately.

I find a route to expiate my grief and my new terror, to focus the love that found itself horribly adrift, the love that could not save my tiny, broken child. I will make a baby blanket, of course. Every stitch will be cast with this love. Every ounce of affection that what remains of her spirit might accept, will be offered there. Every stitch will catch a mother's and father's love, and as our third child grows and we discover who it is—who it might be—the new love growing will be caught as well. And when her spirit fully departs, when her time is truly past, what love is left will mingle with this new love to finish the blanket that shall warm and comfort her sibling.

What an animistic concept to spring from the heart of an agnostic, deeply apostate, permanently lapsed Catholic. But there is a gaping, bleeding hole in my psyche, now: The data strongly suggest a dyandric origin to the triploidy. Either my sperm was broken, having improperly undergone mitosis, or a second sperm also fertilized the egg. A cell from my body, that should have given my child life, took it instead. I have blood on my hands, and a gravid heart that must somehow be delivered of its unreleased longing and warmth before they sour and turn to rejection and bitterness. And so, to mend my soul before loss could cripple me, I knit.

This third pregnancy progresses. A heartbeat. Simple measurements. As soon as viable, we schedule a CVS. We wait for results.

That day, that glittering-bright and amazing day, I receive a phone call. “The results are: healthy, karyotypically normal, male!” We leave our respective offices on foot and meet midway across town to hold each other and cry tears of relief, tears of joy, tears of hope that our nightmare might be drawing to a close.

There are weeks of gladness, now, and we recenter ourselves towards a normal gestational routine. The blanket progresses, the loves now blending into sweetness as the soft, daisy-yellow stitches gradually amass.

And then a shadow grows. A nagging worry lingers, somewhere just out of sight. A little boy is coming. I've fathered a little boy. A little baby boy. I fathered a boy. A beautiful boy. A father. A boy.

I start sleeping poorly. There are dreams I cannot recall that leave me exhausted. I wake abruptly from dreams of fighting with my parents, the final shouts voiced fully in the dark of the bedroom. Once I punch my sleeping partner in the arm, struggling as a dream-child to defend my dream-family against an abusive captor/abductor. I begin to fear sleep, and the insomnia begins. Thoughts whirl about me in the dark hours, thoughts I grudgingly consider, robbed as they are of dream-expression. I start to write, and I begin to voice questions.

How can I model male for this boy? How can I be something I'm not? How can I exemplify something I've never accepted being? Who will he see when he looks at me? Will he see me, obscured as I'll be by the trappings of all the role into which he will grow? Will he know me?

Will I know my child?

Will my child see me?

Can I hope to share all my love?

There is a fear I call the isolator-fear. It is a bleakness, and a distrust. It is the panicky urge behind every camouflage defense, propping-up every shell, every mask. It is the lie that we, any of us, might truly be unlovable to anyone. It is the lie that the surety of affection to our faces could ever be preferable to even just the possibility of affection to our hearts. It is an insidious serpent that makes islands of us, stony and barren, by threatening to cast us adrift. It devours our relationships and gives us certainty—the certainty that we must always hide.

And at last, in a shifting of darkness, the isolator-fear stirs, feeding greedily on this flood of insecurity. I mustn't rock the boat. There's nothing here to consider; surely I know precisely what I am: a genderqueer man with some complex fetish and much needless angst. It's so simple, how could I let myself be conflicted? I need sleep. This has to stop.

But the powerful, aching love for two dear children, one now nine months dead, one yet unborn and curled quietly within the woman lying beside me, is now furiously ablaze. Every morning, with every stitch, I consider words to share with my son. Every night I rest in bed, sometimes for hours, fiercely brandishing my sorrow in two needles, making a thing of tenderness and nurture, calming and relaxing each twitch of tension in my hands. It is more consuming than any fear.

And as that serpent, in those late, dark pre-dawn hours, winds about my every worry, it cannot help but brush against the firestorm of emotion I have been nursing. Touched by flame, drifting askew in confusion, it catches briefly alight. And in that fleeting illumination, I see the hypocrisy. I see the life that its dusky coils chain me away from. I see the final moment of the interior of the closet all around me, as its walls disintegrate and leave me exposed in a strange new land.

And my world changes.

Tuesday, May 12, 2009

me = very very very tired

So. Time to chatter to my diary about how I'm doing.

AGH.

Baby is not sleeping.

Correction: baby is sleeping. Baby is sleeping quite a lot, in fact. However, baby is not sleeping when I need him to be sleeping, namely between 2am and 6am. Well, okay; more accurately, he's not allowing me to sleep during those hours. He gets plenty of sleep.

General stress kept me from unwinding until, oh, 2:30 this morning. At which point, like clockwork, the little angel woke up, hungry. Long story short, we were up, we were down, we were up again, we tried the bassinet (he was having none of that), we tried co-sleeping (he loved it, but I couldn't fall asleep -- I haven't co-slept with an infant enough to really relax, much as I otherwise enjoyed it), and hey, look, it was 6am, time to remedicate and start another day. For the record, "we" refers to me and my baby; my dear wife was fortunate enough, this time, to remain asleep for nearly all of the drama.

So. I am physically incapable of staying angry at this child. He is an angel boy. He is beyond sweet-tempered -- he's just in a near-permanent good mood. And no, that's not just his parent's perspective; all who encounter him remark (generally in tones of disbelief) at his unshakably happy disposition. I shouted at him deliriously a couple of times around 6am when he refused to stop squealing happily and thumping the walls of his bassinet, but then picked him up and laid him down next to me, and when next I opened my eyes there was his tiny cherubic face beaming awe and delight into mine, clearly transfixed with wonder at being in mama's bed. What was I supposed to do in the face of that? I melted. And so I laughed it all off as best I could, remedicated, and went about waking-up [the rest of] my family.

Tuesday, April 14, 2009

more than 140 chars of banal

Today's accomplishments:
  1. I shipped the baby off to daycare for his first time EVAR
  2. I surrendered our car to the mechanics (who will undoubtedly charge us about a paycheck)
  3. I will shortly begin prostituting myself to recruiters. Yay me.
It might be fair to clarify #3: I don't have any official feedback from the Potential Employer of Great Desirability, but things look highly doubtful. This is demoralizing, but hey, might as well get used to it. So I'm not spending the days with the baby anymore, at least until I've secured employment (and then, well, not then either). I miss him. I'm sure he's having a marvelous time, and I know his sister is having the best day at daycare ever. Moreover, I've got complete freedom from his amazing powers of distraction for the entire afternoon.

It's still crummy. I miss my sweet baby. God, I'm such a mother hen.

Meanwhile, in what appears to be an attempt to procrastinate and avoid contacting recruiters, I'm getting all literate and stuff, tweeting, catching-up on blogs, all that nonsense. In an IM exchange with my wife, I came up with this:
[me] am drinking San Benedetto "Naturale" water.
[me] they were out of San Pellegrino "What I Normally Drink For Sparkly Waterz" water.
[me] and it turns-out that "Naturale" is San Benedettese not for "is an acceptably overpriced, attractively-bottled, Italian sparkling water beverage product for consumption when our local beverage purveyor's San Pellegrino supply has been terminally depleted," as I had originally surmised, but rather for "totally flat, non-sparkling water thing without bubbles or fizz. or carbonation. of any sort."
[me] boooo.
From the above, of course, you can deduce primarily that, when unemployed, I become much more whiny and infatuated with my own [attempts at] wit. I need a job.

Sunday, March 29, 2009

Now what?

My wife and daughter are sweeping leaves in the side yard, after scraping-out the silted-up drainage grooves in our lean-to of a garage. A cold, sunny San Francisco spring day is drawing to a close, and the beautiful, sleeping 4-month old boy on my lap has prevented me from effecting the merest hint of dinner preparations. When the yard workers come in from their labors demanding a meal, boy am I ever gonna catch it.

Oh well. They'll just wake-up my excuse :)

I had this tiny (well, 16lbs.; not so tiny, really, any more) marvel with me at a therapy session a couple of days ago, and I found myself saying to him, as I gazed with wonder into his eyes, "can you believe that when I learned you'd be coming, I almost lost my mind?" Then I teared-up and held him for a good long while, as he grumbled sleepily. It was such a shock, how unimaginably distant that person seems.

I've been thinking a lot, lately, about what I would like to accomplish with this blog. To date, I don't think I have much of anything in the way of readership, beyond one kind comment, and I'll admit that's something I would like to change. I have a private journal for when I simply must articulate something in text that's not for public consumption, and I do make use of it. Even still, I want to share this: I want to share the experiences I'm having with people who can appreciate them.

I don't think I'm at a point where it's feasible, in the next year or so, to get to an IFGE event or Southern Comfort, which would allow for some networking and friendship-founding. This is frustrating.

Also frustrating is the sudden re-entrance of the four-year-old onto the scene, screaming bloody murder about a previously confiscated Hello Kitty charm (US$1 out of a capsule machine). When it's being used to forcibly enlarge the infant's nostrils in the back seat, the toy goes away. The sense of this, sadly, is lost on her. Argh.

... and now, with the two laborers respectively cajoled and released off to the bathroom for a much-needed shower, I've entirely forgotten what on earth I was saying. Oh, yes, what I want to accomplish here, and not being able to network in person. Hm. Well, the short, short version is "I don't really know what I'm trying to accomplish, just yet -- can you tell? I seem to just be writing whenever talking is desired but unavailable." Anyhow. I suppose it's time to rejoin this blissful tide of banality (and continue to beat my head against the brick wall of a determined, overtired preschooler's ire). Perhaps I'll edit this post into something more coherent, later.

Bonding

(at the end of January, 2009)

A fair amount of time has passed since last I wrote -- either here or elsewhere. A fair amount of life has occurred.

My son. My son is here.

He was born, beautiful, marvelous, late in November, and began changing lives.

Amazing tiny marvel in my arms, I often find that I can do little more than coo and murmur and smile as I struggle to salvage enough scraps of my eroded literacy to satisfactorily describe the delight and awe that keep flooding through me.

I am beginning and planning a transition; I am dicing with a vindictive fire, and playing in deadly earnest with my world in the ante; I am sleep deprived and impatient and fearful and resolute.

But each time I hear him draw a sweet little breath, each glimpse I catch of his tiny feet, I wonder what fear is. I kiss his downy hair and everything is happening as it should and must. As I cradle him and he stares at me, I table the dice and let the ****** burn.

For it's a drug, and I'm hopelessly addicted. I love this child. I, Rachel love this child. There is no burden of years of earnest, striving quasi-fatherhood to reconcile, no nomenclature to set aside. I accept myself from the beginning as both his father and his mother, and I understand myself as his mother. Whereas precisely six months ago, the idea of being father to my son terrified me, today in my heart I am his mother, and his Daddy, and I know he knows who I am, and I am at peace.

Sure, it's a thorny peace, with a high-energy 4-year-old, an exhausted-and-confused co-parent, a frustrating day job, and precious few full nights of sleep. But those are my beloved family who love me, and that is my life, and I cannot and would not change things.

Okay, maybe my daughter could be a little less bouncy after 8pm.

...

(2 months later)

I had this tiny (well, 16lbs.; not so tiny, really, any more) marvel with me at a therapy session a couple of days ago, and I found myself saying to him, as I gazed with wonder into his eyes, "can you believe that when I learned you'd be coming, I very nearly lost my mind?" Then I teared-up and held him for a good long while, as he grumbled sleepily. It was such a shock, how unimaginably distant that person seems.

Monday, March 23, 2009

Feeling a bit chatty

Things my daughter and I did this weekend:

  • I introduced her to TMBG. Win.
  • She found a pair of shears and shortened her [own] bangs.
  • She continued, and took several of her bangs clean off.
  • She continued, and took off most of her side locks.
  • She came out to see us, engendering shock and mildly hysterical laughter.
  • I took her to get the rest of her hair cut. She is now me at age 4. Different plumbing, of course, and wearing considerably more pink. It’s moderately disturbing.

Kinda cute, though. I really need to get my parents' old photo albums from the 80s scanned so that I can do some comparative photo spreads.

Tuesday, October 28, 2008

a whimper in the dark

My little girl took a glow stick to bed, tonight. It's not the first time -- she thinks they're just the most fun thing in the world, sometimes, and she's recently discovered Star Wars, and can't get enough of telling me how they look like light sabers. However, it will be the last time for at least a year or so. She got a little bit overzealous with the twisting and cracking to evenly free the catalyst from its little rigid compartments, and cracked the tube. I woke to a confused sort of whimpering (my wife being doped-up on codeine cough syrup and solidly out for the night) (okay, let's face it, I'd be the one doing the wake-up-and-check-on-the-kids routine even were she sober and awake, that's just who we are).

It was an interesting sight -- thank goodness it had been a green stick; had it been blue I'd probably have been distracted by weird memories of American Zombie (great film, except I can't even handle horror spoofs) and much too creeped-out to empathize. The poor dear had managed to spatter her blanket and bedsheets and pajamas with luminescent fluid, and had (in the dark, probably on the verge of falling asleep) rubbed her left eye, causing sudden, lasting stinging and burning. O Pathos! Sleepy, hurty, whimpery 3-year-old!

One exciting, howling- and struggling-filled trip to the bathtub (what, you don't want your painful head held upside-down beneath a faucet running full blast? really?) later, I was helping her out of her [faintly glowing] jammies and talking about how scary it must have been to suddenly start hurting and not know why. She was even extra-brave for me and blinked her eye open numerous times as I flushed it more gently from a cup. It's funny, the odd situations where we find these moments of sympathy, of connection and understanding. I was so proud of her: I knew just how upset she was to be pouring more things into her eye, and I knew she trusted me if I said it was necessary and that it would help her feel better.

Since this is, nominally, a "trans blog", there's an odd sense of incompleteness if I don't tie my convoluted sense of gender identity into this, draw some tangent of meaning, but I can't. There's nothing "T" about this. It's a facet of my life that I want to tie to the person I'm slowly describing, here, but only in that it's part of the foundational self from which that person springs.

Love is always hard to describe, isn't it?